Cerebral Palsy Family Resources

• Cerebral Palsy
• Cerebral Palsy Family Resources

Cerebral Palsy Online Resources

There are many cerebral palsy organizations and support groups that can help you and your family navigate life after a diagnosis. All cerebral palsy organizations offer a network of families who understand the challenges of raising a child with a disability.

American Academy of Cerebral Palsy and Developmental Medicine

555 East Wells, Suite 1100
Milwaukee, WI 53202
Phone: 414.918.3014
www.aacpdm.org

The American Academy of Cerebral Palsy and Developmental Medicine is dedicated to improvement in the care of people with childhood-onset disability, their families, and communities. Their website offers various resources for individuals and families, including a directory of providers.

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Cerebral Palsy Research Network

PO Box 8347
Greenville, SC 29604
Phone: 402.302.CPRN (2776)
www.cprn.org

Cerebral Palsy Research Network is a multi-institutional collaborative effort whose primary mission is to improve health outcomes for people with CP.

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Assistive Technology Industry Association (ATIA)

330 N. Wabash Avenue, Suite 2000
Chicago, IL 60611-4267 USA
Toll-Free: 877-OUR-ATIA (687-2842)
Phone: +1 312-321-5172
www.atia.org

The ATIA is a not-for-profit membership organization of manufacturers, sellers and providers of technology-based assistive devices and/or services. Its mission is to serve as the collective voice of the Assistive Technology industry so that the best products and services are delivered to people with disabilities.

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Cerebral Palsy Foundation

3 Columbus Circle, 15th Floor
New York, NY 10019
Phone: (212) 520-1686
www.yourcpf.org

Leading research, innovation and collaboration that changes lives for people with cerebral palsy.

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National Center on Health, Physical Activity and Disability (NCHPAD)

4000 Ridgeway Drive
Birmingham, Alabama 35209
Toll-Free: (800) 900-8086
www.nchpad.org

NCHPAD is the premier resource for information on physical activity, health promotion, and disability, serving persons with physical, sensory and cognitive disability across the lifespan.

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United Cerebral Palsy

1825 K Street NW, Suite 600
Washington, DC 20006
Toll-Free: (800) 872-5827
Phone: (202) 776-0406
ucp.org

UCP — assisting thousands of people with disabilities and their families — if it had not been for a group of parents who were committed to pioneering an effort to change the world for their children.

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Family Voices

110 Hartwell Avenue
Lexington, MA, 02421
Phone: (888) 835-5669
https://familyvoices.org

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families–including those of cultural, linguistic and geographic diversity—in order to improve healthcare services and policies for children.

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Scottish Rite For Children

2222 Welborn Street
Dallas, Texas 75219
Phone: (214) 559-5000
www.scottishriteforchildren.org

Scottish Rite for Children treats many of the world's most complex orthopedic cases, as well as certain related arthritic and neurological disorders and learning disorders, such as dyslexia. The specialists in our six Centers for Excellence spend a lifetime practicing, researching and pioneering pediatric orthopedic care.

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Mayo Clinic

200 First St. SW
Rochester, MN 55905
Phone: (507) 284-2511
www.mayoclinic.org

Mayo Clinic neurologists, pediatric neurologists, neurosurgeons, orthopedic surgeons, and physical medicine and rehabilitation specialists, as well as other health care professionals work together to diagnose and treat children and adults with cerebral palsy.

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Shriners Children's Hospital

2900 N. Rocky Point Dr.
Tampa, FL 33607
Phone: (800) 237-5055
www.shrinerschildrens.org

Shriners Children's provides individualized specialty care for children with all types of cerebral palsy (CP), from mild cases that require minimal intervention to more complex diagnoses that necessitate a wider range of support services. In 2020, Shriners Children’s treated over 6,700 children with CP, and U.S. News & World Report ranked six of our locations among the "best children’s hospitals for orthopedics" in the United States.

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Nationwide Children's Hospital

700 Childrens Drive
Columbus, OH 43205
Phone: (614) 722-2000
Nationwide Children's Hospital

Nationwide Children’s Hospital is a destination academic pediatric medical center designed to manage the most complex of diseases. We treat the sickest of patients from across the country and around the world. We build research programs to assure tomorrow’s breakthroughs help children everywhere.

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I.D.E.A.

Office of Special Education Programs
U.S. Department of Education
400 Maryland Avenue, SW
Washington, DC 20202-7100
Phone:(202) 245-7459
sites.ed.gov

Whether you are a student, parent, educator, service provider, or grantee, you are here because you care about children with disabilities and their families and want to find information and explore resources on infants, toddlers, children, and youth with disabilities.

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Center for Parent Information Resources

Center for Parent Information and Resources
c/o Statewide Parent Advocacy Network (SPAN)
35 Halsey St., 4th Floor
Newark, NJ 07102
Phone: (973) 642-8100
www.parentcenterhub.org

Early intervention services can help infants and toddlers with disabilities or delays to learn many key skills and catch up in their development.

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Easterseals

141 W Jackson Blvd, Suite 1400A
Chicago, IL 60604
Phone: (800) 221-6827
www.easterseals.com

Easterseals is working to create a world where each child born with a disability is given the support necessary to participate fully in life and to have dreams and hopes, successes and achievements.

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Stepping Stones - Ohio

5650 Given Road
Cincinnati, OH 45243
Phone: (513) 831-4660
steppingstonesohio.org

Stepping Stones is a nonprofit, United Way partner agency that has been making an impact on the Greater Cincinnati community since 1963. We offer a variety of educational and recreation program opportunities for individuals with disabilities.

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March Of Dimes

1550 Crystal Dr, Suite 1300
Arlington, VA 22202
Phone: (888) 663-4637
www.marchofdimes.org

March of Dimes leads the fight for the health of all moms and babies. We support research, lead programs and provide education and advocacy so that every family can have the best possible start.

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Medicaid

7500 Security Boulevard
Baltimore, MD 21244
Toll-Free: (877) 267-2323
Local: (410) 786-3000
www.medicaid.gov

The Center for Medicaid and CHIP Services (CMCS) is committed to partnering with states, as well as providers, families, and other stakeholders to support effective, innovative, and high quality health coverage programs.

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Supplemental Security Income

Social Security Office
10824 N.Central Expressway
Dallas, TX 75231-1004
Toll-Free: (800) 772-1213
https://www.ssa.gov/ssi
Office Hours
Monday-Friday 9:00 a.m. - 4:00 p.m.

Supplemental Security Income (SSI) provides monthly payments to people with disabilities and older adults who have little or no income or resources.

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Social Security Disability Insurance

Social Security Office
10824 N.Central Expressway
Dallas, TX 75231-1004
Toll-Free: (800) 772-1213
https://www.ssa.gov/disability
Office Hours
Monday-Friday 9:00 a.m. - 4:00 p.m.

Social Security Disability Insurance (SSDI) or “Disability” provides monthly payments to people who have a disability that stops or limits their ability to work.

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Insure Kids Now: Centers for Medicare & Medicaid Services

7500 Security Boulevard
Baltimore, MD 21244
Toll-Free: (877) KIDS-NOW (877) 543-7669)
Office Hours
Monday-Friday 9:00 a.m. - 4:00 p.m.
https://www.insurekidsnow.gov

Insure Kids Now gives information about the Children’s Health Insurance Program (CHIP) and Medicaid health insurance programs that offer free or low-cost health and dental coverage for eligible children and teenagers.

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Temporary Assistance for Needy Families (TANF)

North Austin Complex
4601 W. Guadalupe St.
Austin, TX 78751-3146
Austin, Texas 78711-3247
Phone: (512) 424-6500
https://acf.gov/ofa/programs/temporary-assistance-needy-families-tanf

The Temporary Assistance for Needy Families (TANF) program is designed to help families with children experiencing low-income achieve economic security and stability. States receive block grants to design and operate programs that accomplish one of the purposes of the TANF program.

While TANF jurisdictions must meet certain work participation and cost sharing requirements, they have considerable flexibility with TANF funds to implement programs that best serve their distinct communities.

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The ARC

2000 Pennsylvania Avenue NW
Suite 500
Washington, DC 20006
Toll Free: (800) 433-5255
https://thearc.org/

The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

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Parent to Parent USA

2000 Pennsylvania Avenue NW
Suite 500
Washington, DC 20006
Toll Free: (800) 433-5255
https://www.p2pusa.org/

Our mission is to support a national network of Parent to Parent programs to ensure access to quality emotional support for families of individuals with disabilities and/or special health care needs.

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CP Alliance Research Foundation

500 7th Avenue
8th Floor
New York, NY 10018
Phone: (646) 340-1208
https://cparf.org/

Cerebral Palsy Alliance Research Foundation (CPARF) is the foremost nonprofit organization in the world focusing on research and innovation for people with cerebral palsy and other disabilities.

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Google Scholar

https://scholar.google.com
Google Scholar search for Cerebral Palsy documentation and research.

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National Institute of Health

National Library of Medicine
9000 Rockville Pike
Bethesda, MD 20892
Phone: (301) 496-4000
https://medlineplus.gov/

NIH’s mission is to seek fundamental knowledge about the nature and behavior of living systems and the application of that knowledge to enhance health, lengthen life, and reduce illness and disability.

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MedlinePlus

National Library of Medicine
8600 Rockville Pike
Bethesda, MD 20894
https://medlineplus.gov/

MedlinePlus is an online health information resource for patients and their families and friends. It is a service of the National Library of Medicine (NLM), the world's largest medical library, which is part of the National Institutes of Health (NIH).